Supporting the patient’s adaption process by a person-centred eHealth tool: a feasibility study reflecting perspectives from patients and registered nurses in liver cirrhosis
Outpatient management of liver cirrhosis in various disease stages.
A single arm intervention with baseline and 3 month post-intervention measurement. The person-centred eHealth tool, embraceing five modules, with sub-chapters. Each sub-chapter may be activated or deactivated, which facilitates individualised information to each patient. - The first module, is active for all patients and contains seven chapters. The information is about liver disease and LC, physical examinations, and a field of notes where patients may share their thoughts for future communication with their healthcare provider. - The second module, contains seven chapters with information relevant for patients in the early LC phase, which causes vague physical symptoms. The chapters covers medical treatment, self-care recommendations in order to prevent disease deterioration, psychological perspectives of a chronic illness, and information about future examinations. - The third module, contains 13 chapters with information relevant to patients in the decompensated phase, which causes serious and distressing symptoms. The chapters covers information about bodily changes and common symptoms, i.e. fatigue, changed libido, sarcopenia, weight loss, loss of appetite, gastroesophageal variceal bleeding, ascites, hepatic encephalopathy, jaundice and itch. Furthermore, medical treatment, self-care recommendations and how to create a safe home environment and involve relatives. - The fourth module, contains nine chapters with information relevant for patients that is under investigation for or waiting for a liver transplant. The chapters covers information about the process and decisions that needs to be considered during a liver transplant investigation process. Furthermore, self-care recommendations, juridical issues and practical information during the waiting time. - The fifth module, contains five chapters relevant for patients and relatives during the palliative phase of LC. These chapters covers adapted information about the common late and advanced symptoms, i
Patients: 1. Age ≥18 years 2. Diagnosis of liver cirrhosis 3. Planned follow-up at one of the two study clinics Registered nurses: 1. Registered nurses that are users of the Care plan liver cirrhosis at Swedish hospitals
Patients: 1. Persistent overt hepatic encephalopathy