MyPath – Developing and implementing innovative patient-centred care pathways for cancer patients: formative evaluation
Cancer
Implementation of the MyPath digital solution for systematic symptom mapping in cancer patients. Patients will use the MyPath solution as part of their regular follow-up. They will record their symptoms on their mobile phone, PC or tablet before hospital visits. Researchers will collect data from MyPath, including symptom reports (such as pain, energy levels, and concerns) by the patients. In addition, researchers will collect technical usage data from MyPath, such as how much time users spend using MyPath, which functions they click on, and technical errors that occur. Patients will be asked to complete some additional forms that map health-related quality of life and use of healthcare services. They will be asked to complete the forms at regular intervals (for example monthly) during the project. Relevant information will be extracted from the patients’ medical record to evaluate how the solution is used in follow-up, and how healthcare personnel document the use of MyPath. Stakeholders will be invited to individual interviews about their experiences with MyPath. These will last approximately one to one and a half hours. The interviews will be audio recorded. The recordings will be transcribed, and the content analysed according to scientifically recognised methods.
1. Aged ≥18 years 2. Able to understand and speak the local language 3. Diagnosed with cancer 4. Able to provide informed consent
Potential participants will not be eligible if they have cognitive and or communication difficulties that would make a semi-structured interview/focus group discussion not possible