Improving chronic kidney disease identification and assessing its association with health inequalities in coding practices

Algorithm-based approach to CKD identification and its association with health inequalities in coding practices

Registry ID
ISRCTN16150211
Source registry
ISRCTN
Status
Recruiting
Study type
OBSERVATIONAL
Sponsor
Lancashire Teaching Hospitals NHS Foundation Trust
Enrollment
60000
Start date
2026-04-20
Completion date
2028-07-19
Last update
2026-08-17

Conditions

Summary

Chronic Kidney Disease

Detailed description

This project aims to transform CKD detection through a data-driven tool that addresses coding inaccuracies, health inequities, and economic burdens. The early stage of the study consists of three parts: 1. Development and pilot testing of a novel CKD detection algorithm designed to identify undiagnosed CKD cases and incorrect CKD coding. 2. Optimisation and validation of the algorithm to improve CKD classification accuracy by enhancing its sensitivity and specificity. 3. Analysis of kidney care inequalities by comparing coded and uncoded CKD groups, stratified by socioeconomic status, age, sex, ethnicity, other health conditions (comorbidities) and major complications related to CKD (sequelae), including cerebrovascular disease. The study does not involve any patient contact and uses existing health records only. There is no additional sample or collection of data beyond what is routinely generated during standard care. How the participants' data is handled during the study (full details can also be found in the Protocol 6.4 Overview of data): GP practices securely send NHS numbers and CKD registers for all registered patients to the research team under Section 251 approval. No other identifiers are shared. Once received, NHS numbers are immediately converted into unique pseudo IDs within secure LTHTR systems. After conversion, all processing and analysis use only pseudo IDs. The original NHS number file is stored separately in an encrypted, access-restricted area. Laboratory results from the OMOP database are linked using pseudo IDs to combine serial tests for each patient. All data processing takes place within the Lancashire and South Cumbria Secure Data Environment. A pseudonymised analysis dataset is then created containing pseudo IDs, lab results, demographics, and comorbidity information. This dataset supports CKD algorithm development, performance testing, and inequalities analysis. All analyses use pseudonymised data only. Algorithm outputs remain ps

Interventions

Inclusion criteria

1. Adults aged 18 or over (and no upper age limit) 2. Patients registered with GP practices located within Lancashire & South Cumbria (L&SC) participating in the study 3. No other specific inclusion criteria apply

Exclusion criteria

1. Patients under the age of 18 2. Patients registered with GP practices outside Lancashire & South Cumbria (L&SC) 3. No other exclusion criteria apply

Locations

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