Developing a patient-physician co-created national diabetes-related emergencies management monitoring model
Diabetes mellitus
The DEKODE study is designed to improve the care of people admitted to hospital with diabetes-related emergencies. It consists of four work packages, each focusing on a specific aspect of DKA care. Below is a summary of what will happen to participants in each work package, presented in a clear and straightforward way. Work Package 1: Understanding Inequalities in DKA Care We will use anonymised health records of patients with DKA from 2001 to 2023 to study differences in care and outcomes across regions, age groups, ethnicities, and other factors. This part of the study does not involve direct interaction with participants. Work Package 2: Exploring Lived Experiences of Patients, Carers, and Healthcare Professionals Patients: Patients treated for DKA will be invited to complete a short online questionnaire about their hospital experience. Some patients will be invited for a one-on-one online interview lasting about 30 minutes, where they can share their experiences before, during, and after their hospital stay. A follow-up questionnaire will be sent to patients 3 and 6 months after their discharge to understand any changes in their health and recovery. Carers: Carers (e.g., family members or friends) identified by the patients with their consent will also be invited to participate. They will be interviewed separately to share their perspective on supporting someone with DKA. Healthcare professionals: Healthcare professionals involved in DKA care (e.g., doctors, nurses, and specialist teams) will be invited to take part in online interviews or focus groups. These will last about 30–60 minutes and explore their experiences in managing DKA. All interviews and focus groups will take place online (e.g., via Zoom) and will be audio-recorded. Work Package 3: Evaluating the Implementation of the DEKODE Model Researchers will study how hospitals across the UK have adopted the DEKODE model for standardising DKA care. Healthcare professionals from hospitals using the DE
Work Package 1: Patients admitted with DKA from 1 January 2001 to 31 December 2023. Work Package 2: 1. Patients: 1.1. Those admitted to the hospital with DKA 1.2. Have the capacity to provide consent 1.3. Aged 16-99 years 2. Carers: 2.1. Those who are identified by patients as recruited above 2.2. Have the capacity to provide consent 2.3. Aged 16-99 years 3. Healthcare workers: 3.1. Those involved in treating DKA for patients recruited above 3.2. Have the capacity to provide consent Work Package 3: Healthcare professionals involved in providing DKA care in hospitals participating in DEKODE
Work Package 1: Individuals with non-diabetic ketoacidosis or other metabolic disorders that could confound the study results Work Package 2: 1. Patients without DKA 2. Providers not directly involved in DKA care 3. Unable to provide consent Work Package 3: Individuals who do not have sufficient interaction with the DKA care process