The co-design of a cystic fibrosis weight management programme to be delivered alongside an existing NHS digital weight management programme (MoreLife®)
Adults with cystic fibrosis who are living with overweight or obesity
This study aims to co-design, with people living with CF and CF health care professionals - a CF-specific weight management programme (CF WMP) to support people living with CF and overweight or obesity to eat a healthy diet and become more physically active. The programme will be designed to support people living with CF adjust to their new diet and activity needs that have resulted from improved health with Highly Effective Modulator Therapies (HEMT). It will be co-designed to be delivered alongside an existing NHS digital weight management programme. Co-development process: The Person-Based Approach (PBA) will be used to develop the programme. This approach focuses on developing programmes that are easy to use, helpful and interesting to the people they are designed for, by working with them throughout the design process. Planning the programme: A group of 20-30 people living with CF and overweight/obesity on HEMT will be asked to record what they eat, and their activity will be measured using an activity monitor. They will then be interviewed about what influences how they eat and how active they are. CF health care professionals will also be interviewed about their experience of advising people living with CF to eat fewer calories and become more active. The results from these studies will be used to choose what additional content the CF-specific weight management programme needs to provide that is not provided by the NHS digital weight management programme and meet the specific needs of people living with CF and overweight/obesity. Co-designing the programme: A group of people living with CF, CF health care professionals and weight loss experts will work together to design the CF-specific weight management programme. The results of the planning stage and known methods that can help people to change their diet and physical activity habits will be shared with the group. The group will decide on what should be included to make the programme easy to use, hel
1. A person with lived experience of CF and overweight or obesity (eligible for participation in co-design workshops and think aloud interviews) 2. A registered Clinical Nurse Specialist, Physiotherapist, Dietitian, Psychologist, or Physician working at a UK adult CF centre or registered Clinical Nurse Specialist, Physiotherapist, Dietitian, Psychologist, or Physician working in adult weight management services(eligible for participation in co-design workshops only) 3. Able to access Zoom© or MS Teams© video conferencing platform (if a co-design group participant) 4. Able to be locate themselves in a private room to take part in the workshops ( if a co-design group participant) 5. Over 18 years of age 6. Able to provide informed consent
1. Not a registered Clinical Nurse Specialist, Physiotherapist, Dietitian, Psychologist, or Physician working at a UK adult CF centre 2. Not a registered Clinical Nurse Specialist, Physiotherapist, Dietitian, Psychologist, or Physician working in adult weight management services 3. Not a person living with CF and overweight or obesity