Extrait

This CARRA Registry study will create a foundational database for rheumatic diseases of childhood using a novel informatics infrastructure developed as part of the larger clinical project. The creation of a CARRA-wide informatics infrastructure will enable efficient, observational, disease-related data capture across all CARRA sites for pediatric rheumatic diseases. The CARRA Registry study will demonstrate the feasibility of expanding to more data intensive registries for observational studies, comparative effectiveness research, pharmaceutical clinical trials and translational research.

Critère d'inclusion

• Juvenile Idiopathic Arthritis,Systemic Lupus Erythematosus,Mixed connective tissue disease,Juvenile Ankylosing Spondylitis,Juvenile Dermatomyositis,Localized Scleroderma,Systemic Sclerosis,Vasculitis,Sarcoid,Fibromyalgia, Primary,Auto-inflammatory Disease,Idiopathic Uveitis Idiopathic

Liens

• ictrp
• nct