Understanding and overcoming barriers to research involvement of patients with kidney disease from underserved communities
Kidney disease
The research participants will be identified by the direct care team who look after them. They will represent the different ethnic communities, all age groups and modalities of kidney treatment. The participants will be given an information sheet translated into their native language, and information about the study will be supplemented with a short video if required. Consent will be undertaken by the research team. The participant will then undergo a one-to-one meeting with a research ambassador in which a narrative interview will be undertaken. This will take place in the trust's premises and will be structured around a topic list. The interview will last for about 1 hour and will explore how their ethnic and cultural background influences their experience of kidney disease and engaging with clinical services and research; whether barriers to research participation exist and ways to overcome them; how they might be supported and encouraged to participate in future research. The responses to the participant will be recorded, with their permission. This will be the only encounter that the participant has in the research study. Interviews will be undertaken with around 10 members of the renal research team and 10 members of other research teams around the NCA to learn about their understanding of diverse and underserved communities; obstacles that they think prevent greater engagement and what would provide them with more confidence to approach patients from diverse ethnic community backgrounds to increase research engagement.
1. 18 years of age or more 2. Patients with kidney disease under the care of the NCA kidney centre 3. Selected from one of the six main ethnic communities served by the NCA kidney centre
1. <18 years of age 2. Lacking the cognitive capacity to consent to participate in the research