Developing outcome indicators for integrated care systems
Integrated health and social care
Data collection: Data will be collected via two online Delphi surveys (administered via JISC surveys), the first in June to July 2026 and the second in September to October 2026. A Delphi survey is an iterative process of gathering opinions, summarising and sharing responses across multiple rounds with the aim of reaching consensus among those taking part. Our plans are informed by the COMET handbook (Williamson et al., 2017) and the COS-STAD approach (Kirkham et al., 2017). Recruitment: Professional participants will be recruited through existing contacts and networks, snowballing and publicly available information (e.g., ICSs, professional associations, voluntary sector organisations). Lay participants will be recruited through existing contacts (e.g. existing PPIE groups), snowballing and research networks such as NIHR Be Part of Research, Join Dementia Research and ENRICH, as well as care and support charities. Where possible for publicly available contact details or existing contacts, an email invitation, together with the relevant Participant Information Sheet (PIS), will be sent from the research team. Potential participants will be invited to register their interest with the research team. Once participants have registered interest and provided contact details (name and email address), the research team will ask participants to confirm eligibility to take part via email. Once confirmed a unique participant ID for each participant will be generated and participants will then be sent a link to the Delphi survey itself (which include an e-consent form to take part). Where direct invitation is not possible, a flyer/poster will be circulated by relevant networks, charities, and posted on social media platforms convened by the respective research team centres. The flyer/poster will include links to the study website and PIS (professional and lay) and invite participants to register their interest in taking part. Once eligibility has been confirmed via email par
Professional participants: 1. A professional role that is relevant to integrated care and/or outcome measurement such as clinicians and frontline staff (health and social care), ICS staff, policymakers and their arms-length bodies, charities representing relevant conditions or population groups, and researchers with an interest or expertise in outcome measurement, integrated care and/or relevant long-term health conditions 2. Aged 18 years or over 3. Able to complete a survey in English online Lay participants: 1. Adults with long-term complex health and care needs due to a physical and/or mental health condition or a carer (family/friends) of such an adult 2. Aged 18 years or older 3. Able to complete a survey in English online 4. Living in England
Professional participants: 1. Working outside of England Lay participants: 1. People living outside of England 2. People who lack capacity to consent